This stupid country just lets people fucking die and get disabled everyday. I’m sick of it. My tax dollars just go to killing and dismembering people abroad. Fuck fuck fuck.

  • hypercracker@hexbear.net
    link
    fedilink
    English
    arrow-up
    54
    arrow-down
    1
    ·
    4 months ago

    I guess I will be the sole person to point out that “chronic Lyme” is viewed by the medical establishment as a pseudoscientific diagnosis. Not really interested in debating this but lotta people have no idea that it isn’t considered a legit thing, so for our readers here ya go. Not to diminish peoples’ suffering from whatever it is they’re going through but it probably is not caused by being bitten by a tick several years ago.

    • Self_Sealing_Stem_Bolt [he/him, they/them]@hexbear.net
      link
      fedilink
      English
      arrow-up
      36
      arrow-down
      1
      ·
      4 months ago

      The same medical establishment that only recently admitted that chronic fatigue syndrome was real and not something women were making up for attention? The same medical establishment that ignores and gaslights those of us with “invisible illnesses”? (I’ve been told my disablity isn’t real by a doctor before and so have many others!) The same medical establishment that treats different races differently due to racist nonsense thats still taught in med school? The same medical establishment that does conversion therapy (torture) on autistic children?

      Good thing they’ve never been wrong or caught lying before.

              • aaaaaaadjsf [he/him, comrade/them]@hexbear.net
                link
                fedilink
                English
                arrow-up
                24
                arrow-down
                1
                ·
                edit-2
                4 months ago

                That doesn’t make quacks like chiropractors or chronic lyme specialists correct though, the latter of which is the context of this comment thread. The medical establishment is correct in their assesment of chronic lyme not being a real medical condition. In fact, pseudoscientific fraudsters such as people that run chronic lyme treatment camps, prey on people struggling with chronic illness so that they can sell them ill-effective treatments, which leads to coercive and abusive situations. The medical establishment being clear on what is real and what is not is good for preventing these abusive or coercive situations from occurring. Thus people suffering with undiagnosed chronic illness can move forward and seek a diagnosis based on sound medical advice, instead of wasting their time getting treatment for a condition that doesn’t exist.

      • somename [she/her]@hexbear.net
        link
        fedilink
        English
        arrow-up
        9
        ·
        4 months ago

        Reminds of me of trans healthcare. It’s the Wild West in a lot of ways simply because doctors don’t give enough of a shit to “properly” do advanced studies of things. Like, we know the basic tools are safe, but a lot of bigger questions about medical patterns you fit, how longer term HRT might affect the body in one way or another, it’s a big unknown space, but a lot of doctors just shrug and ask what you really are and stop thinking there.

        Like even something that’s sorta becoming a common treatment, like Progesterone still gets slapped with like “unverified” smears, despite years of reports through the grapevine, because again they can be added to actually do official research.

        When I was closeted I heard some friends of mine at the time in med school joke about trans people, and basically say they taught absolutely nothing about them. Among other hurtful thing.

    • glans [it/its]@hexbear.net
      link
      fedilink
      English
      arrow-up
      26
      ·
      4 months ago

      TRUE

      Lyme disease is a real thing but usually (especially in “left” context) when someone says “lyme” there is a 90% chance that is NOT what they are talking about. It’s a conspiracy theory promoted by anti-science grifters to entice people to travel to spend weeks or months at retreats getting long term antibiotics infusions or whatever else.

      The suffering on the ground is real but total misdirection. It’s kind of like the satanic panic or something.

      I posted recent recent clinical practice guidelines, this stuff is addressed in there. They know its fake.

      AFAIK lyme disease has a pretty good prognosis assuming you have access to health care. And if you don’t that is a different thing and whether “they” do know how to treat it or not, doesn’t matter much to you .

    • KobaCumTribute [she/her]@hexbear.net
      link
      fedilink
      English
      arrow-up
      25
      ·
      4 months ago

      I guess I will be the sole person to point out that “chronic Lyme” is viewed by the medical establishment as a pseudoscientific diagnosis.

      The idea that disease infections can cause permanent organ damage and ongoing health problems even after the disease itself is gone is, bafflingly, something that’s only started being accepted since covid started doing that on a big enough scale that researchers a) had no choice but to acknowledge it, and b) started getting a little funding to go and look to see if other diseases also did that sort of thing as well (they do, it’s just covid is particularly bad about it and also extremely contagious).

    • Chronicon [they/them]@hexbear.net
      link
      fedilink
      English
      arrow-up
      19
      ·
      edit-2
      4 months ago

      To add a bit more context: Its not as simple as “chronic lyme is fake”, because literally like 10% of lyme disease cases will have lingering symptoms after treatment. To distinguish it from quacks who say anyone with vaguely similar symptoms must have chronic lyme (even if there’s no evidence they had a lyme disease infection in the first place), scientists refer to it as PTLDS (Post-Treatment Lyme Disease Syndrome).

      If the person actually had lyme disease to begin with, it may well be PTLDS symptoms, and may well be helped by a second course of antibiotics. If they didn’t actually confirm it was lyme though, or the lyme infection was years ago, it’s way more questionable. Their symptoms probably aren’t fake but they may well be getting taken advantage of by quack doctors, and making their health worse by continuing to take antibiotics for extended periods of time, etc.

    • aaaaaaadjsf [he/him, comrade/them]@hexbear.net
      link
      fedilink
      English
      arrow-up
      17
      arrow-down
      1
      ·
      edit-2
      4 months ago

      Yeah “chronic Lyme” is not a real illness. Lyme disease is very much real obviously, but not chronic Lyme, which is usually used by quacks to sell snake oil, or as an excuse by celebrities to disappear from the limelight for a while.

  • FlakesBongler [they/them]@hexbear.net
    link
    fedilink
    English
    arrow-up
    47
    ·
    4 months ago

    “Why don’t people go outside anymore?”

    Your outdoor cats and pollution killed all the birds, your cars and traps killed all the possums and now the grass is filled with ticks which will give you a horrible illness if they bite you

    Which they will because ticks are icky

    • glans [it/its]@hexbear.net
      link
      fedilink
      English
      arrow-up
      37
      ·
      4 months ago

      they give it to pets. it’s the same vaccine. the costs of getting through regulation for humans was too much and not worthwhile.

      people who think vaccines are a money making plot needs to get get their heads screwed back on. so many vaccines held back because of being insufficiently profitable.

      • casskaydee [she/her]@hexbear.net
        link
        fedilink
        English
        arrow-up
        12
        ·
        4 months ago

        people who think vaccines are a money making plot needs to get get their heads screwed back on. so many vaccines held back because of being insufficiently profitable.

        Doesn’t that necessarily mean that the ones that aren’t held back are profitable?

        • glans [it/its]@hexbear.net
          link
          fedilink
          English
          arrow-up
          13
          ·
          edit-2
          4 months ago

          Meh. Not much. None of the companies really want to do it anymore. Vaccine development is just not compatible with capitalism. Remember that even mass vaccination campaigns are generally only 1-5 lifetime doses. Behind every newly-scheduled vaccines (something that happens every 5-10 years) there are 1000s of research avenues that went nowhere, or nowhere lucrative. They cost to develop, test, deploy etc. And the benefit is dispersed, in the future, and not obvious to individuals. A quintessential collective good; must be done at scale.

          Look into the Ebola vaccine: it was 90% ready to go for a decade and almost ended up in the same situation as the Lyme vaccine: abandoned because no pharmaceutical business (or military) was willing to pay for the costs of the final approval processes. There is FINALLY a malaria vaccine.

          If vaccines were developed as ambitiously as they could be imagine what we could have them for: acne, UTIs, ear infections, common cold, STIs, cold sores, h pylori, MRSA, c diff, parasites, a real TB vaccines, HepC, HIV etc. And that is just thinking about life here in chilly first world nations. Last few years have seen an uptick of finally approved vaccines for tropical diseases like chikungunya and dengue fever which is great.

          none of that shit will be profitable

        • Justice@lemmygrad.ml
          link
          fedilink
          English
          arrow-up
          8
          ·
          4 months ago

          Yes, you are correct.

          But all of this is just an argument for government researchers designing vaccines, testing them, etc. and the government owning all the patents and such. And I’d go a step further and wish the US government would then publish their findings, results, etc. freely and publicly and encourage all other nations to do the same. The US gov could hold the patents within the US for one discovered here (to prevent private corps from trying to gobble them up) but allow anyone worldwide to manufacture vaccines freely. Like with covid so many people suffered and died because Moderna, et al. desperately just HAD to make maximum profits. As a corporation, that’s what they do. And when people started discussing forcing them to make the patent public, Bill Gates shit his diapers and everyone stopped talking about it (it was non serious to begin but he killed it totally)

          • glans [it/its]@hexbear.net
            link
            fedilink
            English
            arrow-up
            2
            ·
            4 months ago

            i’m with you in principal but why does your proposed solution rely so heavily on the US owning everything? Wouldn’t putting it out into the world under some kind of Libre license be better? (Creative Commons Share-Alike for medicines.)

            Bill Gates is such a fucking menace.

            I am not sure if we are talking about the same thing but I recall people in Oxford were seriously contemplating publishing their COVID vaccine info freely but Bill Gates flew his ass to England and had a private meeting with the guy in charge. Told him that brown people can’t be trusted to do manufacturing properly and it was a recipe for disaster letting them make half-assed products. Idk if that was really compelling to the guy or maybe also waved around prospects of future funding or whatever. But whatever it worked.

            • Justice@lemmygrad.ml
              link
              fedilink
              English
              arrow-up
              4
              ·
              4 months ago

              Uh, I think I got off on the US because I live in this shithole. Obviously any vaccines developed outside the US shouldn’t belong to the US at all. My main concern with patents and stuff would be US corporations doing what they did they to the insulin patent. It was never intended to be profitable, and yet it is.

              It’s all just tinkering stuff ultimately because I would like to see private pharma totally gone and only be publicly funded and then internationally shared for the betterment of all human existence.

              • glans [it/its]@hexbear.net
                link
                fedilink
                English
                arrow-up
                1
                ·
                4 months ago

                Obviously any vaccines developed outside the US shouldn’t belong to the US at all.

                What about those developed in the US?

                My main concern with patents and stuff would be US corporations doing what they did they to the insulin patent.

                Well first of all insulin was developed in Canada. But I was actually thinking of it in suggesting something akin to Share-Alike. Which I didn’t really explain but it is a feature of certain Creative Commons licenses e.g. CC BY-SA:

                ShareAlike — If you remix, transform, or build upon the material, you must distribute your contributions under the same license as the original. No additional restrictions — You may not apply legal terms or technological measures that legally restrict others from doing anything the license permits.

                Now obviously this is intended for artistic works. Even applying it to source code is highly discouraged. But I do find it useful to contemplate the ideas. CC are attempts to make libre culture integrate in capitalism and as such are doomed to certain limitations. So depending if you are thinking reformist or revolutionary, will go in different directions. Under communism we wouldn’t have patents. We would have inspections, regulations etc but patents… don’t think so.

                My concept is that some sort of SA written with pharmaceuticals and medical devices in mind, could have, time travel-wise led in a different direction.

                I am totally unclear in my limited research about whether/how a patent from 100 years ago is in force or relevant today.

                In any case, nobody uses that insulin, everybody uses modern insulins and what really costs is the delivery devices (needles). What we need (under capitalism) is a mechanism to extend the good vibes “virally” to related innovations. Whatever they may be.

                background re insulin

                The discovery of insulin revisited: lessons for the modern era

                In late May 1922, the University of Toronto and Eli Lilly worked out an agreement that gave Eli Lilly the exclusive rights to manufacture and distribute insulin (free of charge) to selected physicians and hospitals (1, 48, 49). After one year, the company was free to charge for insulin and patent any innovations on their product (see also below). A very close working relationship between the Toronto team and scientists at Eli Lilly ensued (50, 51). The rationale provided by the board of governors of the University of Toronto for favoring one company was that concentrated effort by one firm would be the most effective solution to overcoming the supply problem. Heading off anticipated criticism of being “unethical or unfair or as in any way prejudicial to the free manufacture of insulin” (1), they also stated that they would “give other firms, as well as hospitals and other non-commercial concerns, every chance to do the best they can by publishing the details of the methods … in full at an early date” (1, 48, 49). With the resources and advances Lilly applied to the manufacture of their pork “Isletin” by late 1922, they were starting to overcome the drastic shortage. Further modifications overcame several potency and stability issues, and, by early 1923, Lilly was able to manufacture sufficient high-quality insulin for the needs of the entire world (1, 48, 49). By late 1922, the Connaught Laboratories had updated their equipment and production facilities and also begun to overcome their initial production challenges (1, 47, 48). The University of Toronto also granted complete British patent rights to the insulin extract to the Medical Research Council of Great Britain (48), and European rights to the nonprofit Nordisk Insulin Laboratory, facilitated by the Nobel laureate August Krogh of the University of Copenhagen and his associate, H.C. Hagedorn, later merging with Novo to become the present-day insulin manufacturing company Novo Nordisk (48).

        • Evilphd666 [he/him, comrade/them]@hexbear.net
          link
          fedilink
          English
          arrow-up
          5
          ·
          4 months ago

          Or theres a “treatment” that ends up being a subscription plan on your lofe thats even more profitable.

          I hope China can put them all to shame to the point the world can ignore it and our companies are forced to assimulate.

        • glans [it/its]@hexbear.net
          link
          fedilink
          English
          arrow-up
          4
          ·
          4 months ago

          lol I mentioned that just down the thread.

          My understanding is that development was encouraged by the US military because they were worried about bio terrorism. The September 11 Never Forget anthrax attacks were not yet totally forgotten about. There was a case where a critically ill man flew to Texas(?) where he was admitted to hospital, staff didn’t realize they needed to follow strict contact precautions, and a nurse contracted Ebola which she died of. As did the patient. It caused a panic because people realized Ebola may not be confined to “over there” and worried what if extremely sick Africans started coming to the US maliciously?? They could go to the mall or anything and infect all kinds of people. So it became salient to actually develop a vaccine to this disease because now white/wealthy people could be at risk. It became a a National Security issue and military $$$ got involved.

          So researchers that had been toiling away for decades suddenly got an influx of money and attention. Since a lot of the groundwork was already done, they quickly developed a vaccine which was effective in humans. But when it came time to finalize the approvals by like filling in the forms, dotting the is, crossing the ts, doing the final study, resources were pulled. Americans weren’t afraid of Bio Terrorism any more. Now that the problem was back to only affecting Black people in Africa it didn’t seem to be a priority so who cares.

          I remember hearing about this in the time between the development of the vaccine and its approval. Scientists saying “we have this, its ready to go!” Of course they are trying to court favor with people more powerful than themselves, not be firebrands, but the frustration was very clear.

          In many ways the story is the same as the Lyme vaccine. Ebola is a way worse disease 10000x but why should we have any diseases?

          And people think too many vaccines is the conspiracy. Hey everyone: it’s too few vaccines.

          (Not even starting about distribution.)

  • Red_Sunshine_Over_Florida [he/him]@hexbear.net
    link
    fedilink
    English
    arrow-up
    35
    ·
    4 months ago

    I wish we could go in the woods without fearing for our health. As I begin to understand the ecological causes of the proliferation of this and other diseases like Chronic Wasting Disease in America, it is setting in for me that American settler colonialists and later iterations of land developers seriously destroyed the balanced of North America’s ecosystem.

  • glans [it/its]@hexbear.net
    link
    fedilink
    English
    arrow-up
    31
    ·
    4 months ago

    Assuming you are talking about actual Lyme Disease, it’s a bit confusing because there seems to be a fairly well established treatment protocol. Here is oodles of stuff about it.

    2020 Guidelines for the Prevention, Diagnosis and Treatment of Lyme Disease by Infectious Diseases Society of America, American Academy of Neurology, and American College of Rheumatology

      • glans [it/its]@hexbear.net
        link
        fedilink
        English
        arrow-up
        3
        ·
        edit-2
        4 months ago

        might mean

        so you think that people who are on the internet talking about “chronic lyme disease” are so dumb they don’t even know the difference? that they haven’t even bothered to educate themselves about rudimentary things like the meanings of words individual words?

        hmm

        But Ya fake diseases are not generally given a lot of attention. This question has been reviewed on a collective level and found to be without substance as a general matter. There is no investigation to do.

        A person’s actual complaints ought to be taken seriously by their responsible provider. If there is an actual physical pathology, these fake ass diagnoses are only distractions that delay treatment.

        https://www.niaid.nih.gov/diseases-conditions/chronic-lyme-disease

        https://sciencebasedmedicine.org/does-everybody-have-chronic-lyme-disease-does-anyone/

        https://quackwatch.org/related/lyme/

        ETA: linebreaks between links

        • barrbaric [he/him]@hexbear.net
          link
          fedilink
          English
          arrow-up
          1
          ·
          4 months ago

          so you think that people who are on the internet talking about “chronic lyme disease” are so dumb they don’t even know the difference? that they haven’t even bothered to educate themselves about rudimentary things like the meanings of words individual words?

          I think somebody could easily conflate the two and use the shortened version, especially if they’re not the person with the disease and don’t know better.

          But Ya fake diseases are not generally given a lot of attention.

          Not an expert or anything, didn’t know it was considered fake. I’d just heard it mentioned in the past, and given that there are diseases with confirmed long-term persistent symptoms (polio, COVID, I think chickenpox?) I assumed it was valid.

          https://www.niaid.nih.gov/diseases-conditions/chronic-lyme-disease https://sciencebasedmedicine.org/does-everybody-have-chronic-lyme-disease-does-anyone/ https://quackwatch.org/related/lyme/

          Imo this link you gave doesn’t really support dismissing chronic lyme as fake. It does report that prolonged antibiotics usage does nothing to help, but then at the bottom clarifies that there are non-human tests being done to see if infection does persist in some way after the course of antibiotics.

          I take issue with the idea of inherently trusting doctors to always know best when many are generalists and just don’t know things (see how doctors have reacted to the “end of COVID” when it’s still having random surges), to say nothing of the long history of dismissing patient claims (especially of minorities and women). For a personal example my aunt had to go to 3 different doctors to get the tests to determine that she had endometriosis. Imo we may as well believe that those reporting to have “fake” diseases usually do have real symptoms, even if they’re wrong about the causes. All of this is complicated by fake doctors plugging fake treatments, obviously, but it’s easy to see how people end up there when the medical system seems to fail them. It’s probably not helping that our healthcare is brutally expensive in the US which predisposes people to look for alternatives (most of which are indeed quackery).

          • glans [it/its]@hexbear.net
            link
            fedilink
            English
            arrow-up
            2
            ·
            4 months ago

            confirmed long-term persistent symptoms (polio, COVID, I think chickenpox?) I assumed it was valid.

            post polio syndrome, long covid and shingles. all real. All preventable with vaccines. :) PPS poorly understood due to wide spread vaccination especially in wealthy countries = few incentives to study it. (Actually we should have eradicated polio by now.) Shingles now has a specific vaccine for those already infected with chickenpox (98% of adults).

            see how doctors have reacted to the “end of COVID” when it’s still having random surges)

            how have they reacted?

            well I tried to find out on my own here is what I found. It’s from 2022. Knowledge and experience of physicians during the COVID-19 Pandemic: A global cross-sectional study . Kind of come ci come ca

            Most physicians (87%) revealed a good level of knowledge while only half (54%) reported adhering to adequate preventative measures. More than half of participants (56%) indicated that the policies implemented to handle COVID-19 by their public health agencies were insufficient or disorganised.

            trusting doctors to always know best when many are generalists

            So in the comment you replied to I posted 3 documents. The primary one was published by Infectious Diseases Society of America, American Academy of Neurology, and American College of Rheumatology. Those are organizations of specialists, not “generalists”.

            But also included 2 documents that were aimed at non-specialist doctors to provide context about what those people might have available to them. They are shorter, less comprehensive overviews of the current state of knowledge for someone who needs to brush up quickly. Like a family doc who sees something once in a long while. And they are more accessible to someone who doesn’t want to spend all weekend reading journal articles. Like most of Hexbear I assume. Between the three of them I think they provide a response to the claim “they don’t even know how to treat it”.

            1 of those was published as a supplement to the full guidelines by the same authors, and the other by American Academy of Family Physicians (AAFP), which in the US is the organization that sets the standards your family doc is held to. In any case, they (and all other similar publications) are all in full alignment with the longer guidelines because there is no question about “chronic lyme disease” in the conspiracy meaning of the phrase.

            or a personal example my aunt had to go to 3 different doctors to get the tests to determine that she had endometriosis.

            Well that sucks. :( Endometriosis is notorious for this sort of diagnostic delay. One thing to consider is that the test required to diagnose is a surgery and we also don’t want doctors sending everyone to surgery at the drop of a hat. It does make sense to proceed through a diagnostic process starting at less invasive/risky. There are opposite problems in medicine where this isn’t adhered to. Example: Extremely high levels of c-sections which do not have any benefit and carry a lot of risks. (Especially in facilities which pay more for c-sections! big time correlation.)

            If you are interested, for the sake of comparison to the above, [here is the AAFP about dysmenorrhea (painful menstruation, which would have been the symptom your aunt went in with) to see the different things they would be considering. and on endometriosis specifically. They have some other interesting-looking stuff on the subject in the sidebars but unfortunately pay-walled >:( Maybe can find on libgen scihub ebookee etc if motivated. Or also Clinical diagnosis of endometriosis: a call to action - American Journal of Obstetrics & Gynecology for a specialist viewpoint. Comparing these to the lyme disease documents it’s clear that endometriosis and “chronic lyme disease” differ substantially: one exists and the other is fake. There is zero dispute about the existence of endometriosis.

            if interested in a much+++++ more nuanced look at the question of the effects of individual and collective experience of health care on trust of doctors (et al) I would suggest Harriet Washington’s Medical apartheid : the dark history of medical experimentation on Black Americans from colonial times to the present

            Imo we may as well believe that those reporting to have “fake” diseases usually do have real symptoms, even if they’re wrong about the causes.

            When people talk about “chronic lyme” they are making specific claims about a pathogen, pathology and treatments. Which are false.

            I am not arguing about anyone’s symptoms. Which we have no idea what those might be in the case of “so many people I know” other than they “fucking die and get disabled”. Virtually nobody dies of lyme disease. We got 99 preventable causes of death but “chronic lyme” aint one of them. The context leads me to be extremely skeptical of claims re disability.

            • barrbaric [he/him]@hexbear.net
              link
              fedilink
              English
              arrow-up
              2
              ·
              4 months ago

              So in the comment you replied to I posted 3 documents.

              Shit that’s my bad, they were inline so my brain just saw them all as a single link. As you say, the other two are definitely more for the layperson and specifically argue against CLD’s existence. A re-read of the NIH link also led to me noticing something important in the first section I’d missed on the first read-through, where they explicitly state that “CLD” is not to be used because it’s quackery, and so serious study should use the term “Post Treatment Lyme Disease Syndrome”. That’s also definitely on me, and I find it very frustrating that they’ve had to change the language used to distinguish from the quackery when both terms sound interchangeable without knowing more.

              The primary one was published by Infectious Diseases Society of America, American Academy of Neurology, and American College of Rheumatology. Those are organizations of specialists, not “generalists”.

              I think you might’ve misunderstood me, I was referring to the family doctors an individual will interact with. While the bodies of guidelines and research they should be pulling from are legitimate, stuff like that stat of 46% of doctors failing to take appropriate COVID precautions (in 2022, I’d guess it’s much lower now) doesn’t inspire confidence in the ability of those individual doctors to properly interpret the facts when interacting with patients.

              I think our perspectives on the medical system are mostly in agreement, but I was ignorant on this topic, which led to me being more willing to take OP’s word uncritically. Thanks for all effortposts!

              • glans [it/its]@hexbear.net
                link
                fedilink
                English
                arrow-up
                2
                ·
                4 months ago

                Well I used to believe in “chronic lyme” and various other stupid shit. Ask me in 2044 and I’ll tell you what fake ass shit I believed in 2024.

                I added extra line breaks in one comment. sorryislurredmyurls. I think the top comment with the lyme guidelines is clear enough though probably no one is clicky cklicky. (Weirdly no comments from OP surprised that there actually is treatment for lyme disease.)

                Re the doctors: come ci come ca. But the family doctors, the ones you will meet out in your life, should be at least vaguely aware of the AAFP stuff. They actually don’t consider themselves “generalists”, but rather specialists in family medicine and participation in AAFP is a key part to that. So those people are in receipt of this information. Obviously YMMV. I am not aware of any front line profession that doesn’t struggle to adhere to adhere to COVID guidelines. But again to contextualize there is no controversy about whether COVID exists. Need to keep things in scale.

  • brainw0rms [they/them]@hexbear.net
    link
    fedilink
    English
    arrow-up
    30
    ·
    edit-2
    4 months ago

    Yeah, this is very true. I have a theory that Lyme disease is responsible for a large segment of undiagnosed mental illness in the US. Many people don’t know this, but you can develop severe schizophrenia or other mental illness symptoms after having it, even some time later. Has happened to people I knew.

    I once looked into the bizarre subreddit communities which harbor those likely suffering from mental illness like r/gangstalking, and the various “morgellons” related (and adjacent) communities. A lot of those people have in common that they are either past/present abusers of stimulants like meth/dextroamphetamines, have had Lyme disease (sometimes more than once), or both.

  • Feinsteins_Ghost [he/him]@hexbear.net
    link
    fedilink
    English
    arrow-up
    28
    ·
    4 months ago

    Lyme’s symptoms mimick other things like Alzheimer’s and fibromyalgia, making diagnosis difficult some times. Sometimes you need a ‘Lyme Literate Medical Doctor’ who specializes in tick borne illnesses to diagnose Lyme’s.

    Early stage Lyme’s is treatable with NSAIDS and doxycycline antibiotics, comrade. According to a family member who is a FNP in Lyme territory, even the later symptoms are treatable.

    I’m genuinely asking, is it a failing of Uncle Sam or a failing of medical science? I get the impression it isnt the government but I’m also a pretty dumb kind of guy so

    • robot_dog_with_gun [they/them]@hexbear.net
      link
      fedilink
      English
      arrow-up
      24
      ·
      4 months ago

      fibromyalgia

      iirc fibromyalgia isn’t a specific thing either, just “lol chronic pain we can’t figure out” but the insurance companies need a formal category to pay out

      • Zedd @lemmy.dbzer0.com
        link
        fedilink
        English
        arrow-up
        2
        ·
        4 months ago

        Yeah. Fibromyalgia is “you have pain, we don’t think you’re just drug seeking, we’re not investigating any further.”

    • hexthismess [he/him, comrade/them]@hexbear.net
      link
      fedilink
      English
      arrow-up
      19
      ·
      edit-2
      4 months ago

      I just skimmed a Harvard Health article that broke it down to a failing of the economic system, which in turn led to a medical failing due to lack of research / lack of time to diagnose. The article ends by saying that the organization of affected people and local doctors could lead to increased care.

      Harvard Health article

    • MaeBorowski [she/her]@hexbear.net
      link
      fedilink
      English
      arrow-up
      26
      ·
      edit-2
      4 months ago

      Not OP, but around here, getting bitten by ticks is very common. Almost everyone I knew who liked being outdoorsy had been bitten at least once, and usually had several tick-bite stories. If you don’t do a thorough tick check after every hike or jaunt into weeds or woods, you’re playing roulette and will get one before too long. I myself have had to pull ticks out of me probably around 10-15 times (mostly as a kid when I was less careful when out hiking).

      edit to add: Even when you’re careful, ticks can still be easy to miss and you can still get bitten. The little fuckers are notorious for how sneaky they can be. I didn’t mean the above to imply that someone who gets bit is at fault for not being careful enough, because it still can happen sometimes even when you take precautions, it just becomes much less likely.

      • aaaaaaadjsf [he/him, comrade/them]@hexbear.net
        link
        fedilink
        English
        arrow-up
        12
        ·
        4 months ago

        This is why I always wear long pants and shirts while on a hike. Learnt this lesson as a 15 year old during a 3 day 60km hike. Our group all got bitten by ticks sometime on day 2, walking though tall grass in shorts and short socks.

    • mar_k [he/him]@hexbear.net
      link
      fedilink
      English
      arrow-up
      8
      ·
      4 months ago

      doesn’t literally everyone who spends any time in a woodsy area gets them?? i got bitten like 6 times a year as a kid and got a couple last year

      • keepcarrot [she/her]@hexbear.net
        link
        fedilink
        English
        arrow-up
        6
        ·
        4 months ago

        Bafflingly, I have never gotten a tick despite being in situations where everyone else does. Mosquitoes love me though :( (leeches and ticks seem to avoid me idk why)

        • mar_k [he/him]@hexbear.net
          link
          fedilink
          English
          arrow-up
          6
          ·
          edit-2
          4 months ago

          might be a regional thing, i looked this up and am deep in the blue:

          can’t really say this is clearly indicative of tick bites overall since i think our ticks are just more infected, but it’s probably a combination of both

        • booty [he/him]@hexbear.net
          link
          fedilink
          English
          arrow-up
          1
          ·
          4 months ago

          I’m a fellow mosquito magnet. I’ve pulled one deer tick off my after a whole lot of hiking (and literal thousands of mosquito bites regardless of what measures I try to take against them)

          Never gone wading through the bayou to see how leeches like me though

          • keepcarrot [she/her]@hexbear.net
            link
            fedilink
            English
            arrow-up
            1
            ·
            4 months ago

            In Australia I’ve spent some time in more tropical areas (Queensland), no leeches, including just faffing about in swamps and stuff. Also just slept on the ground in more semi-arid areas (SW WA), and gotten no ticks despite everyone else getting them. On the other hand, people have spotted me with a cloud of mosquitoes around me, and I’ve gotten over 300 in one night. idk what’s going on