Philosophical ramblings to justify my existence, which according to capitalism has no value because I don’t have the ability to work.
Please consider donating to the Open Medicine Foundation to help people suffering from extremely disabling and underfunded lifelong illnesses with no know treatment.
Philosophical ramblings to justify my existence, which according to capitalism has no value because I don’t have the ability to work.
I totally get it, healthy people love trying to relate, but sometimes it can negate our experiences.
“I’m tired too”
“I’m in pain too”
“I’m [x] too”
like I don’t think these comments healthy people make come from bad places, but they often dont really understand our problems tend to be orders of magnitude more severe than the “common meaning” of the word, because they have never experienced it. I mean I would assume the same before I got my illness.
I’m thinking this too. Like I currently have a disease with a high mortality rate, will my partner, friends, family properly spread the word if I die, or are there some people I care about who it’ll never reach, I wonder.
very much appreciated. because the public stereotype of it being fatigue tends to worsen the problem.
The fuck is happening in the past few weeks in china? Loads of these kinds of incidents all of a sudden?
I mean it connects to lemmy, kinda like mbin.
That’s a good shout. I think I’ll do that in the coming weeks :).
I am bridged, but I prefer not to share my handle as my Mastodon and Bluesky accounts are have full name, while I want to keep the lemmy ones anonymous.
“fatigue” being in the name was one of the reasons it used to be dismissed as psychological.
But now, especially with the help of long covid, we’ve found a distinct clinical entity, with clear physical markings, Complement system overractivation, T-cell exhaustion, WASF3-caused mitochondrial dysfunction etc.
That’s because whoever wrote this has little clue what they are talking about.
What they are calling “long fatigue” is medically known as “post-acute infection syndrome” and contains hundreds of symptoms which don’t necessarily include fatigue.
It can be caused by both viral and bacterial infections, Lyme being one of the bacterial ones.
I hate when the media tries to “simplify” the name to “fatigue”.
There’s a reason the medical profession has abandoned the terms post-viral fatigue syndrome and chronic fatigue syndrome as names, in favour of Post-Actute Infection Syndrome, and Myalgic Encephalomyelitis
They are extremely inaccurate names, these conditions can cause hundreds of symptoms and fatigue isn’t always one of them.
It’s an incredibly minimising name when these conditions are known to have caused death, and can cause people to lose the ability to speak or digest in severe cases. “Fatigue” is something healthy people experience too.
But the media always loves “dumbing it down” to “fatigue”.
This is really cool.
Which of these make their data publically available?
Because the greatest scientific contribution would not be hording the data so you can publish your paper, but making it freely available, so any group of researchers can look through it and contribute to scientific knowledge by analysing the findings in different ways
I like the elevator comparison.
But I often posts memes that get from a couple hundred to a thousand upvotes, and every time, atleast 15%-20% of my notifications are crazy tankie takes.
May I suggest trying out
lemmy.cafe
(which blocks ML too, on top of grad and hexbearg)
and only subscribing to non-political communities
I completely understand.
I’m sick of seeing people like this in my feed and my blocklists are crazy long.
Lemmy.cafe is pretty cool with ML blocked, though I’ve noticed a seepage of tankies into .world and lemmee unfortunately
I sometimes might block a little too liberally, so perhaps some of the people here are just TANKIE LIGHTTM but I think 95% of my blocks are full blown tankies, and if instance is ML I won’t do any due diligence, instant block when you say something sketchy.
lemmy.cafe blocks the big three and has good uptime
The two main reasons people attack LW is:
people who criticise it because it is by far the largest instance, and thereby means lemmy isn’t as decentralised as it could be, I think this is a fair point, because it has caused federation issues with for example aussie.zone in the past.
Tankies who get mad the average lemmy.world user does not share their admiration for China, Russia, North Korea, Stalin, and Mao. Thereby accusing the whole instance of being “libs” and “bigots”.