• TehBamski@lemmy.worldOP
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    5 months ago

    Holy moly. That’s quite an experience. How long did it take you to regain your walking ability, if you don’t mind me asking?

    • Tippon@lemmy.dbzer0.com
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      5 months ago

      No, I don’t mind. Feel free to ask me anything :)

      It took around three weeks for me to get back on my feet properly, and another few months to get back to almost normal. It’s a bit tricky to be accurate, as a lot of it was down to the muscle wastage, but some was down to the illness that caused me to be in the coma*. As well as the weakness, I had a few balance issues too, but that was probably a side effect of the muscle wastage. The little muscles that you dont think about had wasted too, so struggled to keep me upright.

      I did have a funny moment because of it all though - while I was in the coma, my wife started some renovations on our house, so we moved in with my mother. After I got out of hospital I wanted to set up my computer and catch up with some friends.

      I started to set up in a spare bedroom, but had to take the computer upstairs, so picked it up and started to carry it. I got about three steps up and got stuck. In my excitement, I’d forgotten about the muscle wastage and ran straight for the stairs. With one leg on one step and the other on the next step, I just stopped. My brain and body caught up with each other, and I couldn’t move. I couldn’t put the computer down either, so I just had to stand there and wait for my wife to come and help >.<

      *I’ve got an autoimmune disease that’s part of a rare group of diseases called Vasculitis. My particular flavour is called GPA - Granulomatosis with PolyAngiitis. It means that my immune system attacks the healthy cells in my body, and little granulomas form. They’re kind of like little granules of tissue. My kidneys were the worst affected, and I had to have a kidney transplant just over a decade ago. It’s a manageable disease, but because mine was undiagnosed for so long while it was active, it caused a lot of damage.

      I’m mostly ok, but will always have some issues.